Little Man’s CT Scan Today

Today I had to hold my son very tightly while he had a little mask put on his face to put him to sleep under general anaesthetic. He needed to have a CT scan. This is to help the cardiologists prepare and plan for the next open heart surgery. The photo was taken in the... Continue Reading →

World Mental Health Day

I didn't know it was World Mental Health Day until this morning. This last week my Mental health has struggled, it's felt like a hard week. On Tuesday I started an online group 5 wk course for PTSD. On Friday it was 2 years since we lost Baby J to a miscarriage. The nanny has... Continue Reading →

Planning a holiday with CHD ain’t that simple

Are you planning a holiday for your family? We have been thinking about it but after advice from our Cardiac Liason Nurse, we realise taking an overseas holiday at this time just isn't that simple. Living with a Congenital Heart Defect really does mean there is a lot more to consider & some things may have to be sacrificed for now.

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