You know the movie scene. It's a cold night. It's usually snowing, possibly Christmas. There's a lone person standing outside looking in through a window. They are looking at a family by the fire having fun and laughing. I've felt like this over the last two years, like I'm on the outside of it all... Continue Reading →
Little Man’s CT Scan Today
Today I had to hold my son very tightly while he had a little mask put on his face to put him to sleep under general anaesthetic. He needed to have a CT scan. This is to help the cardiologists prepare and plan for the next open heart surgery. The photo was taken in the... Continue Reading →
Christmas isn’t over!
I decided to put the Christmas decorations away today. The Christmas chocolates are almost all gone, and I needed to clear everything away to really get into gear for the new year. As I was carefully winding the lights around the piece of cardboard, I heard the postman dropping a few letters through the letterbox.... Continue Reading →
Thank you to those who see us!
I wanted to say thank you to those who have supported us with the journey with Azariah & those who have covered us in prayer. Support has come from unexpected places, believe me! And sadly, it hasn't come from some expected places. I can't tell you how overwhelming and scary it is and has been.... Continue Reading →
World Mental Health Day
I didn't know it was World Mental Health Day until this morning. This last week my Mental health has struggled, it's felt like a hard week. On Tuesday I started an online group 5 wk course for PTSD. On Friday it was 2 years since we lost Baby J to a miscarriage. The nanny has... Continue Reading →
Catching the dreaded “C” means I’ve had to isolate away from my baby
We've lived with this dreaded thing hanging over our lives for so long now and for so many of us, life is beginning to resume some normality. And for us it is in some ways but in others, our life isn't nomral anyway. My son, Azariah, is still a vulnerable baby while he waits for... Continue Reading →
Planning a holiday with CHD ain’t that simple
Are you planning a holiday for your family? We have been thinking about it but after advice from our Cardiac Liason Nurse, we realise taking an overseas holiday at this time just isn't that simple. Living with a Congenital Heart Defect really does mean there is a lot more to consider & some things may have to be sacrificed for now.
Heart Month: Diagnosis day – the day we became CHD parent’s
February is Heart Month, a time to raise awareness of all things heart. Our journey started the day we became CHD parent's, which was the day we got his diagnosis. My faith had been rocked after having a miscarriage and now it was being tested again.
Our Rainbow Baby had open heart surgery at 13 days old
We decided to try again pretty soon after we lost Baby J at 11 weeks pregnant. Pregnancy after a loss can be very difficult and we just couldn't relax or let go. We decided to wait until our 20 wk scan before we got our hopes up at being able to keep this baby. Our 20 week scan provided us with information that would tip our world upside down in ways we couldn't even imagine.