We've lived with this dreaded thing hanging over our lives for so long now and for so many of us, life is beginning to resume some normality. And for us it is in some ways but in others, our life isn't nomral anyway. My son, Azariah, is still a vulnerable baby while he waits for... Continue Reading →
Are you planning a holiday for your family? We have been thinking about it but after advice from our Cardiac Liason Nurse, we realise taking an overseas holiday at this time just isn't that simple. Living with a Congenital Heart Defect really does mean there is a lot more to consider & some things may have to be sacrificed for now.
February is Heart Month, a time to raise awareness of all things heart. Our journey started the day we became CHD parent's, which was the day we got his diagnosis. My faith had been rocked after having a miscarriage and now it was being tested again.
We decided to try again pretty soon after we lost Baby J at 11 weeks pregnant. Pregnancy after a loss can be very difficult and we just couldn't relax or let go. We decided to wait until our 20 wk scan before we got our hopes up at being able to keep this baby. Our 20 week scan provided us with information that would tip our world upside down in ways we couldn't even imagine.